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#PosturalOrthostaticTachycardiaSyndrome

1 post1 participant0 posts today
Public
Tom Kindlon

(UK)
"I spoke with my friend's husband who's a PIP assessor, for advice about my upcoming PIP review, and was given some useful insights about how the process works from the inside, including specifics about ME & #longCovid ..."

threadreaderapp.com/thread/190

#MEcfs #chronicillness #Spoonies @mecfs @longcovid @chronicillness
@spoonies
@disability
@fibromyalgia
#Fibromyalgia #Fibro #FMS #FM #PosturalOrthostaticTachycardiaSyndrome #POTS @pots

miss m Profile picture miss m @FatiguedStill 14h • 15 tweets • 2 min read • Read on X Last night I spoke with my friend's husband who's a PIP assessor, for advice about my upcoming PIP review, and was given some useful insights about how the process works from the inside, including specifics about ME and long Covid 🧵 People with ME and long Covid will only receive points for cooking, washing and dressing. It's unlikely we'll receive points in any other activity. Few applicants will be awarded points for eating and drinking. It's viewed that if you can grip cutlery, no matter how much pain you're in or how long it takes you to eat, then you are independent. Only applicants with eating disorders or a paralytic hand will be awarded points.
Public
Aftab Alam

Postural Orthostatic Tachycardia Syndrome (POTS) monannausa.com/postural-orthos #Orthostatic, #OvercomingPosturalOrthostaticTachycardiaSyndrome(pots), #Postural, #PosturalOrthostaticTachycardia, #PosturalOrthostaticTachycardiaSyndrome, #PosturalOrthostaticTachycardiaSyndrome(diseaseOrMedicalCondition), #PosturalOrthostaticTachycardiaSyndrome(pots), #PosturalTachycardiaSyndrome, #PotsPosturalOrthostaticTachycardiaSyndrome, #Syndrome, #Tachycardia, #WhatIsPosturalOrthostaticTachycardiaSyndrome

monannausa · Postural Orthostatic Tachycardia Syndrome (POTS)Comprehensive information on Postural Orthostatic Tachycardia Syndrome (POTS), including symptoms, causes, diagnosis, and treatment options
Continued thread
Public
Tom Kindlon

2/
"The investigators hypothesize access to personalized information from a wearable device will enable participants to reduce post-exertional malaise. The investigators will include up to 25% individuals whose #postexertionalmalaise is caused by a condition other than #LongCOVID"

#PosturalOrthostaticTachycardiaSyndrome #POTS #MEcfs #CFS #PwME
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome
#LongCovid #PwLC #postcovid #postcovid19 #LC
@pots @mecfs @longcovid

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