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#endometriosis
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(he/they) entre el dolor y el colocón continuo de la niebla mental y las ganas de vomitar os juro que la sensación continua que tengo es como si me hubiese drogado y no pudiese tener ningún tipo de control sobre mi cuerpo. me tengo simplemente que sentar y dar giros con la cabeza en la almohada para intentar sentir que sigo estando aquí.
esto es #CovidPersistente en colaboración con el dolor de #Crohn y #Endometriosis
Study Reveals Potential Pain Relief Strategies https://www.diningandcooking.com/2010558/study-reveals-potential-pain-relief-strategies/ ##inflammation #alcohol #caffeine #dairy #diet #endometriosis #EndometriosisPain #gluten #health #Mediterranean #MediterraneanDiet
One in four women in England have reproductive health issue, survey finds https://www.theguardian.com/society/2025/apr/10/one-in-four-women-england-reproductive-health-issue-survey #Polycysticovarysyndrome #Cervicalcancer #Women'shealth #Endometriosis #Ovariancancer #Reproduction #Menstruation #Breastcancer #Inequality #England #Science #Health #UKnews #Women
Major study reveals how gluten, dairy, coffee & alcohol impact endometriosis symptoms. Diet changes could help ease the pain 
https://www.theguardian.com/society/2025/apr/05/major-endometriosis-study-reveals-impact-of-gluten-coffee-dairy-and-alcohol
#Endometriosis #WomensHealth #ChronicPain #nutritionmatters
Crippling pain hasn't slowed down Amber as she prepares to run 500km
By Bill Ormonde
Suffering severe pain from endometriosis, there are days when Amber Bryant can barely get out of bed. Yet she's about to run 500 kilometres "back home" to Broken Hill to raise money and awareness about the disease.
Major #endometriosis study reveals impact of gluten, coffee, dairy & alcohol
“Foods that contain refined sugars, carbohydrates, unhealthy fats, dairy, red and processed meats … can create inflammation in the body. I would advise keeping a food and symptom diary, which will help to identify any food triggers that could be flaring symptoms such as constipation and bloating, which make pain worse.”
#health #pain #women #disease #foods #dairy #meat #plantbased #endometriose
https://www.theguardian.com/society/2025/apr/05/major-endometriosis-study-reveals-impact-of-gluten-coffee-dairy-and-alcohol?CMP=Share_iOSApp_Other
In case it was missed in the post above, this is my updated article:
https://www.thecanary.co/global/world-analysis/2025/04/01/anna-severe-me-cfs/
My doctor predicts I will die if I don’t leave soon.
I need a solid, safe, home I can go to and recover to at least a stable baseline. It’s not full recovery, but it’s better than a slow death.
Help please 
#PwME #LongCovid #MECFS #Hypothyroidism #ChronicIllness #Neisvoid #Abuse #Housing #Dysautonomia #SocialWork #MedMastodon #PWLC #MutualAid
#HumanRights #Press #Housing #Journalism #MECFS #SevereME #Abuse #Neglect #MutualAid #Narcissist #Psychopath #MCAS #MCAD #Endometriosis #ChronicPain #CostOfLivingCrisis #Melbourne #Australia #DomesticAbuse #DV
@chronicillness @longcovid @neisvoid
@disabilityjustice
@disability @socialwork
@dysautonomia @mutualaid
@mecfs
@chronicpain
@mcas
@australia
@melbourne
This is SO important, for the mental health of millions of women:
I got *much* better care for #endometriosis 30 years ago - because it was a new area of reaearch - than women get now.
Women whose doctors insist it's "normal" to book sick days every month for pain, fainting, etc. (It's NOT).
Women gaslit to feel crazy or weak as they persist in asking for help with agonising pain, weakness and infertility for years, decades.
I hope these tests become available soon
https://floss.social/@rdnielsen/114270708020735976
Four new methods being developed to rapidly diagnose endometriosis:
https://www.sciencefocus.com/comment/endometriosis-underdiagnosed
"Currently, a diagnosis takes, on average, almost nine years and that figure is increasing." (!!!)
Did you know that endometriosis affects 1 in 10 women worldwide? Despite its prevalence, many suffer silently for years without a proper diagnosis. Learn about the symptoms, impacts, and why early detection matters:
Me at ER for cardiac issues
Dr: “Could you be pregnant?”
Me: “No I had a hysterectomy”
Dr: “You look too young for that? Are you sure?”
Me: “I’m confident”
Dr: “I think you might be confused. Maybe it was your appendix.”
Proceeds to order pregnancy test
I’ve had this interaction more times than I can count
Healthcare workers think I’m “too young” to have had a hysterectomy and automatically assume I’m confusing my womb with another organ.
They ask endless questions, only to end up doing a pregnancy test anyways
Perhaps there are patients who confuse their uterus for their appendix, but I would imagine that’s exceedingly rare
The battle I went through to get my hysterectomy was long and arduous. It involved many physicians lecturing me about how I would never be able to have children
Asking insensitive questions like:
“Don’t you want to be a Mom?”
“You might want biological children, many women do”
“What happens if you meet your dream man and he leaves you for being barren?”
You don’t have to endure this type of insulting and misogynistic third degree to get your appendix or gallbladder removed.
They inform you of the surgical risks, you consent, the end.
There’s simply no plausible way to confuse the removal of a WOMB with an appendix
Despite these obvious facts, I’ve had countless doctors assume I’m wrong. That I couldn’t possibly have lost my uterus and it must have been something less important.
I’ve even had “patient CLAIMS hysterectomy”’written in my chart.
Why someone would lie about something so easy to prove or disprove is beyond me.
The end result is always a delay in care while we argue and then wait for an unnecessary pregnancy test which always comes back negative.
Surely we can do better?
I understand that doctors must have a degree of skepticism, and that the price of missing a pregnancy can be incredibly high.
I’m not opposed to them running a pregnancy test if that’s what they feel they need to do.
I am opposed to the delays and gaslighting
It was traumatic to lose my uterus at a young age. The healthcare workers who inundated me with misogynistic questions & put a hypothetical man before me and my health? They didn’t make it any easier.
I feel that trauma all over again whenever I’m questioned about pregnancy
I wish we could endeavour to either TRUST our patient, or just run the pregnancy test without all the unnecessary and (often) rude comments.
I don’t object to the test, I object to the way I’m treated leading up to the test.
Patients know their body best. We know the difference between a womb and an appendix. We know when we’re being talked down to and mistreated.
It causes trauma. Makes us less likely to trust the provider and far less likely to seek care in the future
Please treat your patients with the dignity they deserve. Don’t judge them on how they look, the chronic illness or disability they have or their gender or sexual orientation. Listen to them. Work with them. Let them be a partner in their care.
We can do better together /end
After the hysterectomy I also had a post op complication that was ignored by the ER three times. I had a life threatening internal bleed, but was sent home without tests because they thought I was “exaggerating”.
We MUST listen to patients. I only survived because my accidental advocate stepped up
https://www.disabledginger.com/p/my-most-dangerous-er-experience-and
“What we've shown in this paper is that the epithelial cells can communicate with the macrophages,"… "Our hypothesis is that their cross talk potentially provides an environment that's conducive to the development of the disease."
#Endometriosis #Science #ReproHealth #MedMastodon #ObGyn
https://medicalxpress.com/news/2025-03-hormonal-treatment-endometriosis.html
Watch the recording for our latest community event and join us on 15th April 
We discussed increasing security concerns about period data, conditions like #endometriosis #miscarriage and how #women are seen as cash cows.
That's why we build a secure and private period tracker: to make the life of everyone who menstruates better & safer 
If you use Instagram (or if you want to click on this anyway) this 19 year old woman’s story regarding seeking care for endometriosis is heartbreaking. She can’t to get a hysterectomy because doctors are concerned she may change her mind about babies later, because misogyny tells them all women want babies & if we don’t we’re broken but we may get better later. She’s a lesbian and she’s infertile anyway. She knows she doesn’t want babies.
But I was so impressed with her steady speech and poise telling her story. I was a fidgety, fast talking, nervous wreck last year when I did it, and all my trauma from being denied sterilization is in the past. She’s still in it.
Male infertility can result from several factors, sometimes linked to lifestyle or health conditions.
Read more https://lttr.ai/Acgx3
The #NHS was admirably quick to see my daughter about endometriosis.
She was in surgery within a few weeks. Well done, NHS!
The surgeon made copious notes about finding and removing some of the growths. The word and diagnosis of #endometriosis features prominently.
But later we found through a GDPR request that the GP's notes, for reasons that are yet to be explained, only had it as "suspected enoemetriosis".
This is not on and the NHS desperately needs to sort out its administrative work.
Glyphosate poses risks to female fertility and reproductive health, study says https://www.byteseu.com/832315/ #Cancer #endometriosis #EPA #glyphosate #Health #herbicides #hormones #Infertility #ovaries #pcos #pregnancy #PrimaryArticle #ReproductiveHealth #Science #uterus #weedkiller
